There are days working in diabetes advocacy that are pretty special and today is one of those days.
Because from today, all Australians with type 1 diabetes are eligible for subsidised CGM products. That means, all 130,000 Aussies with type 1 can access affordable CGM and Flash GM in the same way as all other diabetes supplies.
It’s July 1 and kick off is today, so there are likely to be some hiccoughs. And it’s going to take some time for everyone involved – from those of us with diabetes, our HCPs and pharmacies, plus anyone else – to become fluent in it all.
All the information is on the NDSS website, and I know it seems that there is heaps of detail (there is), but it’s worth taking the time to work out which group you are in and understand the process that will be required for you to access subsidised CGM.
I know that there are some people who are a little (a lot) annoyed that one of the regulations that has been put in place. Some people who are new to the NDSS CGM scheme won’t need to see a HCP before being eligible to access subsidised supplies. The rules to be in that group are as follow:
- Must be already using CGM or Flash GM
- Must have ordered CGM or Flash products from the supplier between 1 January 2022 and 1 June 2022
If this is you, there is an easy form to fill in, requiring just a few details including the product you intend to use so that the NDSS can validate that you have indeed ordered within the required timeframe. If you’ve ordered outside that timeframe, you’ll need to have your eligibility form completed by a HCP.
These rules will mean that some people with diabetes who have been using CGM for some time, but have not placed an order with a supplier between 1 Jan and 1 June, will not be fast-tracked, and will need to wait until they next see their HCP to fill in the required form (or have their HCP fill it in online before their next appointment).
I’m in that situation. Despite having used CGM for over 10 years (long before most diabetes HCPs even knew what CGM was!), I will still need to see a HCP to have my form filled in. I’ve been using expired G5 sensors or G6 sensors donated or purchased from pharmacies or others with diabetes for the last couple of years. I did place an order recently to take advantage of a super cheap offer that had been made to lure users, but that was after 1 June.
While frustrating (and I know a lot of people who have found themselves in the same situation), I do understand why it’s necessary. I have heard of dozens and dozens of people who have never used CGM or Flash, who jumped in to get the super cheap introductory offer AMSL were offering for Dexcom G6, and others who ordered a free Libre sensor.
Sure, we can argue that people with diabetes are able to work out how to use tech without HCP instruction, and that probably the case for most people. But there are some people who might find it difficult and that might mean they are not able to get the best out of the device. There is no point using any sort of diabetes technology if it’s not being used properly and I say that as someone who used a pump for the first three years without decent training and education and, because there were so few pumpers around at the time, no peer learning opportunities back then. I was self-funding in 2001 when I started, paying around $300 a month and getting absolutely nothing of value out of it. What a waste of money.
The NDSS is a taxpayer funded initiative and I guess, as a taxpayer, it’s reasonable to want to know that those accessing it are benefiting from it as much as possible.
If we can look beyond the initial teething issues that are inevitable and step back to look at the big picture, Australia’s entry into the #CGMForAll people with type 1 diabetes is incredible and stands up when compared with what is available elsewhere in the world.
There criteria is pretty broad meaning that absolutely no one with type 1 diabetes should miss out. And while initial forms need to be completed by a HCP for many, there isn’t an assessment process that becomes a barrier to access. I have friends with diabetes in other parts of the world where in writing there appears to be #CGMforAll, but the reality is that HCPs wield a lot of power before that becomes a reality. The hoop jumping here in Australia is relatively minor (even with the matter mentioned earlier in this post).
I certainly think that within a few months everyone who wants to access CGM through the NDSS will have been able to. And in a couple of years’ time, subsidised CGM access will just be part of what we get here in Australia, and will be expected. I suspect, however, that the ten plus years of advocacy I’ve been involved in won’t be forgotten. This win has been hard fought. But jeez was it worth it!
I work for Diabetes Australia who administers the NDSS on behalf of the Australian Government. I do not work in the NDSS team. My access to the NDSS CGM initiative is the same as for every other person with type 1 diabetes in Australia – I’ll be seeing my endocrinologist at the end of July to get her to complete the relevant form so I can access subsidised product.