What We Learned from the Online Community in November

We learn something new every day from the responses to our Question of the Day. This past month, our online community was especially inspiring!

Here’s what we learned from the 3 most popular questions of November 2022:

If you use a CGM, how important is it to you that you are able to view your CGM readings on a smartphone?

In a world where we are all addicted to our devices, the same goes for viewing your CGM readings. This month, the top Question of the Day had over 495 responses. The most popular answer choice was “very important” — chosen by over 65% of respondents. On the contrary, there are people in our community who either don’t have a smartphone or don’t feel like it is important to read their CGM readings on their smartphone. 18% of respondents chose the option of “not important” or that they “prefer not to see CGM readings” on their smartphone.

Interesting comments from the community included:

  • “It is not so much important as it is convenient, as I can glance at my phone, pulled from my pocket, easier than looking at my pump unclipped from my belt.”
  • “My iPhone is my primary CGM receiver so it’s absolutely important, but I also have Glance on my Fitbit watch, which is great, and Sugarmate on my laptop, which is also handy. The phone is most critical though.”
  • “It’s not earth-shaking because I can see the level on my pump that’s always with me. It’s only convenient if I’m busy with other activities and have additional reasons to have my charged phone with me. Unlike many others, my nose is not constantly buried in my phone.”
  • “I really don’t like feeling a need to be connected to the ‘social universe’ and am very happy that it’s not necessary to pair my pump with my phone. Pings and beeps don’t improve my life, and I try to remember when a phone meant a call from a friend, not my life blood.”

*Comments have been edited slightly for clarity as needed.

Insulin pumps are only approved for use on specific areas of the body, but many people use other locations. If you use an insulin pump, do you prefer to use any area of your body over other areas? Select all that apply!

Wearing diabetes technology in your skin every day isn’t easy. Respondents chose “abdomen” as their favorite or most preferred insulin pump site location. The least chosen answer was lower legs (shin/calf area) and forearms. The comments shared how important the community feels about rotating their CGM and insulin pump sites to avoid scare tissue.

Some of the top comments from the community:

  • “I said abdomen, but skin is skin. Almost anywhere can work under the right circumstances.”
  • “The point for pump wearers with a CGM is finding rotation sites for both devices when previous injections (for 33+ years) have left scarred areas.”
  • “I rotate four places on each side of my body with my Omnipod — upper outside of thigh, hip, stomach and upper arms. Dexcom is normally on the upper arm, so I put the pod on the underside of my arm in that situation.”
  • “The abdomen is my preferred site. However, it is overused, so I move it around my belly and on my thighs.”
  • “I don’t find it comfortable or practical anywhere else but the abdomen.”

*Comments have been edited slightly for clarity as needed.

Have you ever used inhaled insulin?

Inhaled insulin is the new kid on the block when it comes to insulin — but it’s slowly gaining momentum. Even though 91% of the respondents said they had never tried or used inhaled insulin, the comments on the question reveal that they are interested in learning more. Read more about inhaled insulin here from a T1D Exchange team member who loves using it.

Engaging comments from the community included:

  • “Yes, been using it for almost two years. Injected Humalog is still my primary, but Afrezza is great for ‘I want/need to eat NOW’ situations and for those stubborn highs.”
  • “Looked into insurance coverage — ha, not covered. Would cost approx. $40,000 for 3 months’ supply of the lowest dose, or $155 THOUSAND yearly!!!! Thanks, but no thanks, I will be happy with my pump and Humalog! Crazy”
  • “Overall, I am pleased with inhaled insulin. Sometimes it doesn’t seem effective requiring another dose but overall works faster and falls off faster than injected insulin.”
  • “I’ve never used it. I very well understand the problems with occlusions and stubborn highs. They’re real nuisances. I inject one or two units of Humalog to remedy the problem. But like everything with diabetes, it’s always a gamble. You never know exactly how many units will do the trick, and concern over having to fight a rapid low is always another problem.”

*Comments have been edited slightly for clarity as needed.

Are you interested in asking a Question of the Day? We are welcoming the T1D Exchange Online Community Members to now make suggestions for potential Questions of the Day. Please keep in mind that we ask questions geared toward people living with T1D and their loved ones. We look forward to hearing your input and getting further involved with our community.

Click here to suggest a question now!

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